Occasionally, I peruse the stats on this BLOG to see what’s trending. Not surprisingly, the most popular subject over the past couple of weeks has been “Lyme and ALS” (https://lymehandbook.com/index/400-misdiagnoses/450-lyme-als/ ). Obviously, the fund raising sensation “The ALS ice bucket challenge” has not only turned our neighbors and celebrities into refreshing summer cocktails, but has also sparked a welcoming interest in ALS.
It pleases me to see ALS diagnosed patients consider Lyme disease (LD) as a possible cause of their illness. Lymies have suggested this connection for some time, but then again, us Lymies think most ills are the result of LD. And why not, with the CDC now admitting that there about 300,000 new cases in the U.S. each year, and that many of these cases are misdiagnosed as ALS, MS, Parkinson’s, etc. We all should be wary.
The Ice Bucket Challenge certainly is a Marketing and Fundraising phenomena. Getting the masses to film themselves doing a torturous act based on a dare seems more in line with Steve-O of “Jackass” fame than a national fundraising campaign.
Wouldn’t it be wonderful if to raise awareness for LD in a similar way? What would such a campaign look like? Maybe posting a selfie made-up like a zombie would be fun. We could include a caption like, “THE LYME UNDEAD: BECAUSE THE DOCTOR HAD THE MOXY TO NOT TRY DOXY,”.
Of course, there are plenty of better ideas floating out there. Let’s see what we can do..

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~ by Rob on August 24, 2014.
Posted in CDC, Commentary, Lyme
Tags: Commentary, Lyme, Lyme Disease
Commentary: Lyme Disease, in all fairness, we need more awareness
Occasionally, I peruse the stats on this BLOG to see what’s trending. Not surprisingly, the most popular subject over the past couple of weeks has been “Lyme and ALS” (https://lymehandbook.com/index/400-misdiagnoses/450-lyme-als/ ). Obviously, the fund raising sensation “The ALS ice bucket challenge” has not only turned our neighbors and celebrities into refreshing summer cocktails, but has also sparked a welcoming interest in ALS.
It pleases me to see ALS diagnosed patients consider Lyme disease (LD) as a possible cause of their illness. Lymies have suggested this connection for some time, but then again, us Lymies think most ills are the result of LD. And why not, with the CDC now admitting that there about 300,000 new cases in the U.S. each year, and that many of these cases are misdiagnosed as ALS, MS, Parkinson’s, etc. We all should be wary.
The Ice Bucket Challenge certainly is a Marketing and Fundraising phenomena. Getting the masses to film themselves doing a torturous act based on a dare seems more in line with Steve-O of “Jackass” fame than a national fundraising campaign.
Wouldn’t it be wonderful if to raise awareness for LD in a similar way? What would such a campaign look like? Maybe posting a selfie made-up like a zombie would be fun. We could include a caption like, “THE LYME UNDEAD: BECAUSE THE DOCTOR HAD THE MOXY TO NOT TRY DOXY,”.
Of course, there are plenty of better ideas floating out there. Let’s see what we can do..
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~ by Rob on August 24, 2014.
Posted in CDC, Commentary, Lyme
Tags: Commentary, Lyme, Lyme Disease