230 – Symptoms
Excerpted from CANLYME
The classic rash may only occur or have been seen in as few as 30% of cases (many rashes in body hair and indiscreet areas go undetected). Treatment in this early stage is critical.
The Lyme Rash
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If left untreated or treated insufficiently symptoms may creep into ones life over weeks, months or even years. They wax and wane and may even go into remission only to come out at a later date…even years later.
With symptoms present, a negative lab result means very little as they are very unreliable. Read here. The diagnosis, with today’s limitations in the lab, must be clinical.
Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud’s Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn’s disease, ménières syndrome, reynaud’s syndrome, sjogren’s syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses. see Other Diseases and Lyme…Relationship
If you have received one of these diagnoses please
follow the link below for a detailed list of symptoms:
http://www.canlyme.com/patsymptoms.html
Lyme Handbook 
I have been told by my dr ivhave figromiaja. I live in north tx. Please help. Im very cose to denton
Vickie,
I am not a doctor though I have been investigating and addressing TBI – tick borne illnesses – for well over a decade.
The most important issue is:
If you are infected and you delay treatment, the infection may progress to the chronic/irreversible point.
If you have 3 or more LYME symptoms, then you are correct to be suspicious. FM is definitely one of them. If you do have multiple symptoms, then you should seek out a reputable Lyme Literate Doctor.
Garlic is a natural antibiotic that is a good strategy should your doctor deny you DOXYCYCLENE, etc. But, be sure to replenish your good bacteria with Acidophilus supplements.
Best of luck and keep us posted on your progress,
Rob
My sister is Bartonella positive and definitively diagnosed with ALS … HELP
Sheila,
I’m very sorry to hear about your sister’s prognosis. It frustrates me to no end when doctors diagnose a patient with an incurable and rare disease before treating them for the more likely Lyme disease.
If she has been diagnosed with ALS, then there is a very good chance that she was infected with Lyme disease a while ago. Can she recall having experienced an onslaught of aging symptoms all in a relatively short time span (EG., Hair loss; numbness; vision problems; spasticity; headaches; etc.). If so, then that is probably when she first got infected.
Regardless, it sounds like she will need a long bout of antibiotics. Just how much treatment she will need depends on her body’s reaction. Keep in mind, that antibiotics weaken a person’s immune system. So keep in mind, after an extended period of treatment and, possibly even years, it is just as important to rebuild the immune system through nutrition and exercise.
In addition, antibiotics are also detrimental to one’s gall bladder. So taking plenty of apple cider vinegar during treatment to clean the call ladder is equally important. Intestinal problems and diarrhea may also be a side effect of the antibiotics so be sure to take plenty of acidophilus.
Since ALS is a non-curable disease, I would focus on treating Lyme disease first and see if she experiences any positive results. If she does, it would unlikely be ALS.
Keep us posted of her progress,
Rob
Hi Rob,
Thank you for your note. Sh never experience aging symptoms at all just slurred speech, pain in her neck, weakness on left side. She was on a 28 day cycle of Bicillan and a cocktail of antibiotics that she discontinued in June 2017 and it only occurred to me today, that her symptoms worsened after she stopped with the antibiotics, not sure why she went untreated since then, but she’s been doing very little since then, perhaps going from one sort of healing to another with no meds. Friday she started on Minocycline only the day after her ALS diagnosis. SO … after a lot of research she decided to fill her Doxy script and stop with the minocycline. She will see an LLMD tomorrow … I spend the day researching and came up with one that had a cancellation for tomorrow, thankfully. She also has an appointment to start using Rife Therapy I believe next week or the week after.
Based on what you have described above, It certainly does sound like she has had it for quite a while. It sounds like she’s looking at a bout of intravenous antibiotics. Most likely, CEFTIN and ZITHROMAX. Of course, your L LMD will steer you in the right direction. Based on your symptoms, it looks like a long battle. You both will need to be to be patient.
When you get frustrated with the Medical System – and we all do – you may want to try a more naturopathic strategy. It will certainly help your sister rebuild her immune system after all the antibiotics. I recommend the film, “What the health”. If you have Netflix, it is available.
All the best,
Rob
sorry … i left out all of the symptoms that you mentioned, she didn’t have any of those symptoms at all.